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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@andyj

Hi, Terri M and thank you for your participation as a mentor. I've just joined this forum, and am considering the antibiotic "big 3" treatment for MAC which was diagnosed approx. 6 months ago. Have read so many posts which describe concerns which I identify with, and am somewhat comforted to know that others are coping in many positive ways. Just the other day my infectious disease Doc asked about hot tub use! I find that the jets/hot water to be so therapeutic for arthritic spine etc (I'm 73 and fairly active) I hate to give that up! I live in CA, Monterey Bay, where it's often foggy/rainy and really enjoy a morning or late evening soak. Have you discontinued using a hot tub?

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Replies to "Hi, Terri M and thank you for your participation as a mentor. I've just joined this..."

@andyj Hello, and welcome to our group. I know the heartbreak of thinking of giving up something that you love to do. I feel certain that I caught my mac infection from our hot tub. We were in it every night. Hot tubs are a notorious hot bed for mac. This bacteria has become resistant to heat and chlorine. If you cannot give it up; at least use it without turning the jets on. The bubble's effervescence (mist) are what makes the mac airborne and easily inhaled. Also, empty and clean it more than usual. Try Googling 'Hot Tub Lung'. There are many articles about it. You can have the water tested also if it would ease your mind. I have a site of a specialty laboratory that can test it. We got rid of the hot tub after learning more about mac. I also avoid them at any resorts.

@andyj Hi, I see an NTM specialist in NYC at NYU. When I was first diagnosed in 2016, I asked him about going in the hot tub wearing a mask. He laughed, and said he “was never asked that question” and then said he wouldn’t recommend it, but, it’s up to me if I wanted to take the chance. I decided not to take the chance. Thankfully, I never had, and still don’t have, any symptoms of an active infection. I’ve never been on the antibiotics. I DO have lung nodules, which they watch with CT scans yearly, (or sooner if necessary depending on what shows up). I also have bronchiectasis so I use the Aerobika twice a day for lung clearance and I alternately nebulize .9% and 3% saline daily. I guess, ultimately, it’s up to you if you want to take that chance. I was also going to look into salt water hot tubs but never bothered. That might be something you could consider if you REALLY can’t give up the the hot tub. Good luck.