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New Diagnosis of MAC/MAI & I'm scared
MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)Comment receiving replies
I have bronchiectasis two year that I know. On symbicort doing great coughing very little. Doctor did sputum and I have MAC he said they go hand and hand. He wants me to start the thre antibiotic for over a year. Please I am so afraid. Help
Replies to "I have bronchiectasis two year that I know. On symbicort doing great coughing very little. Doctor..."
Thank you If can’t tolerate one meds it can be changed thanks to irene5
@papillion I am almost at my one year mark of taking the Meds. So far am managing. I have a schedule now and think I can get to the full 18months my Pulmonologist was hoping to reach.
Hi @papillion you may have noticed I moved your post to this discussion on a new MAC diagnosis. I did this so that you can read past posts from other users and learn more about how they approached the disease when they were first diagnosed.
It's great to see that you've already heard from two great members of our community in @jkiemen and @irene5 and in this thread you can find other members who you can connect with.
I also wanted to share these threads with you so you can learn more about MAC and about other people with MAC on Connect.
- (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS: https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/
- Explanation of MAC: https://connect.mayoclinic.org/discussion/newcomers-one-explanation-i-found-on-macmai-to-help-you/
- Psychological Aspects of dealing with MAC: https://connect.mayoclinic.org/discussion/the-pyschological-aspect-of-dealing-with-bronchiectasis-and-mac/
As you can see in this threads and the discussions I linked above, Connect is a community where you can feel comfortable asking questions about an assortment of topics about MAC. I'm glad you already asked a question and I encourage you to keep doing so!
@papillion you mentioned you will be starting three antibiotic treatment. When do you start?
@papillion ...you might want to check with NTMInfo.org for connections to other references etc, Also go to youtube and type in Gwen Huitt MD, others may be skilled with adding reference sites with their computers.The moderator Ethan has added sites helpfully. tdrell
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The decision to take the meds is your decision. However, MAC usually does not go away on its own and gets progressively worse over time. In my opinion it is better to take the Big 3 when you are relatively healthy instead of waiting. I waited because of my fear, and that was not a good choice for me. Everyone reacts differently to them - everyone has his/her own journey. If you can’t tolerate seven days, you can do three, and if you can’t tolerate a particular med, it can be changed. This forum has been a Godsend for me and many others. We are all here for you, and Terri our mentor is wonderful. Good luck to you.