@flib This sounds so much like me. So hard to understand why...today has been, feel like I am going to die, day.
I really miss my old self and hope for ALL of us we get our lives back!

@flip@shooei. I so identify with your comments. So strange to be so lethargic, sad, feeling that your life is over then to have it turn around and feel fine for awhile until the next shoe drops. Up and down does create anxiety as you never know if you will be OK for going out, being with people. Sry diffficult to plan. Also I find speaking exhausting. I love my friends and want to communicate but I wear myself out so quickly. I used to be very active and hope to be again but for now I am just getting use to all the lung clearing devices, nebulized Amikacin as well as nebulized saline’s, timing eating around the medications....learning to accept a plan of attack. Because I have an active lung infection cavity, acid reflux in addition to Bronchiectasis and MAC I am forgoing alcohol, carbonate drinks, spicy food, chocolate, caffein, sugar, and processed foods. Also I am underweight so am trying to gain 10 pounds while exercising to increase muscle strength and stamina. I get very sad sometimes missing my old happy carefree healthy self and it’s hard to feel pretty when you don’t feel good. Self esteem hits a new low. We all need to learn that although this is a struggle we can do this...we can feel better, we are not alone, and the sad times will pass. We need to find joy again. And spoil ourselves whenever we can. Wear lipstick more often if it makes us feel better. Sometimes I look like a bag lady and that doesn’t help. Let’s try our best to live again!