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New Diagnosis of MAC/MAI & I'm scared
MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)Comment receiving replies
Thanks so much for the replies!! @flib, I think you're right, long lungs is probably not a compliment, but it did make me laugh. Sounds like sticking with the 3% is probably good for me. I haven't posted here much, but I want to say what a great place it is to come and gather encouragement and information. I am very embarrassed to say I struggle with health anxiety, and coughing up blood just sends me into that fear - even though I know it is just sometimes a symptom of my MAC, I can't seem to make my anxiety fully accept that. Same way with the fatigue sometimes, I'll think something else must be horribly wrong and I'm dying and then later in that same day I can feel better, get up and accomplish things and decide I'm probably not dying after all. What a hot mess!!!
Replies to "Thanks so much for the replies!! @flib, I think you're right, long lungs is probably not..."
You made me feel better. I have anxiety and then feel better. Loved your comments.
Hi @shooei I know how you feel, dont be embarrassed, I also have bad health anxiety and it is not uncommon so dont worry, Know the ups and downs so well. Lots of us on this site have struggled with mental health over MAC but have become better over time so hopefully you will to, MAC is so complicated especially when we are anxious. Take care Heather
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@shooei Well, I thought I was going to die both yesterday and this morning. Really no energy and coughing like a choo chol train.
By this afternoon I was alive enough to go out and run errands, feed the cats, put away groceries and look around for more chores. No one has yet to totally explain this swing to me. I know air quality affects my breathing a lot. I just got a disability placard to hang in my car so I don't have to walk far to enter stores. It helps with the humidity and the cold. . Lack of exercise is another cause. Getting to the gym can feel like torture and trying to lift weights just silly. Then I do it and by the time I leave (half hour) I'm feeling kind of like my old self. This up and down stuff helps create some anxiety...you just can't count on yourself. At the same time, when it's up time, it gives you hope. Hot mess is right. My swearing vocabulary is fairly limited but I'm working on that too. I have all kinds of filthy names to call this disease. Keep putting one foot in front of the other. Anxiety is part of the pain of having this disease; but people do get better, they learn to cope and have a life. I remember coughing up blood and being really frightened. Eventually that went away. I don't know why. I'm not on any antibiotics (unable to take them...lost some hearing) I wonder if sometimes a blood vessel pops. Wishing you well. Flib