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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)
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@shooei

@windwalker, @alleycatkate, on the 7% sodium. My doc has me on 3% because of my tendency for hemoptysis (seems I have a small bout of that about every 6 months, with some bouts of pink tinged sputum) and he says the 7% would be more irritating. My MAC, as well as bronchiectasis, are both considered mild, which seems weird to me because of the bleeding but I guess some are just more prone to that? Anyway, do any of you with hemoptysis still neb the 7%? Any thoughts? I only do 3% once a day. It definitely helps me clear the gunk! Thank you!

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Replies to "@windwalker, @alleycatkate, on the 7% sodium. My doc has me on 3% because of my tendency..."
Flib | @flib | Oct 9, 2018

@ windwalker I too am on 3%, my doctor's recommendation I did try the 7% just to see if I could do it. She was right. I was having coughing spasms that wouldn't stop and all but knocked me out. I'm back on 3% but still coughing a lot. I have a prescribed codeine
cough syrup I take when the night coughing just won't quite. I hate taking it. Even when it's the smallest sip I feel sleepy and dumb the next day...I'm a lousy addict, thank god. I have been nebulizing twice a day but I may cut back to once until my lungs are not so very sensitive. I've also been told I have long lungs. I don't think it's a compliment. I wonder if that makes it harder to cough up. Flib

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alleycatkate | @alleycatkate | Oct 9, 2018

@shooei ....I am sorry that I have no thoughts on that. I only had blood when I have had pneumonia and was hacking like a wild woman. It sounds right though that you do a milder solution so that you do not irritate your lungs further. Hoping others on this site will chime in with their lung condition versus the salinity of their sodium chloride solution. Kate

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Terri Martin, Volunteer Mentor | @windwalker | Oct 9, 2018

@shooei, Hello. Because of your issue with hemoptysis, you may want to listen to your dr. and stay on the 3%. If that percentage is working for you to bring up the gunk, then I would think that is fine. If your see more bleeding than usual, let your dr. know about it. I hope you are feeling good.

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