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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@alleycatkate

@windwalker ...Hi Terri...It was a GREAT appointment with Dr L at Mayo!! He says he calls you Terresa...not Terri...and, of course, he knows you and your case (though he did not speak to it). The weight of the world has been lifted from my shoulders. I have both mild MAC and mild Bronchiectasis. I need to have antibiotics on hand for flares (not ones used for the big 3 treatment) preferably something like augmentin & continue with my 2x a day nebulizing and a yearly check-up. My biggest takeaway from the appointment was for me to handle my acid reflux. If any here are not aware, most on this site have acid reflux which can aspirate into the lungs. Even if you do not think you have it, there can be "silent reflux"...so check it out...a clue to it is a constant clearing of the throat or a feeling of a lump in your throat. Maybe see a gastroenterologist. He did not like my treatment (Slippery Elm tea after dinner) as the most important thing is absolutely no eating 3 hours before laying down (including daytime naps) and no drinking in that time period except maybe a half a cup of water. The other biggie is not to sit straight up in bed or propped up with pillows when you feel it as you put pressure on the diaphragm. You need to be at an angle... The two fixes are either a block 4-6 inches thick under the legs of the bed at the head or buy a wedge and place it under the mattress....and no mention of drugs (thank the Lord....he is one of the first Dr's to not push drugs!!) I loved him and everything about him... He told me with a smile to relax and that I will outlive my husband. Oh, on the brief mention of that article I posted with 7% saline killing MAC in an in-vitro situation...he says he knows of no studies done that prove this so the premise was sort of dismissed. Thank you, Terrie, for your thoughts on the wonderful healing and considerate Dr at the Mayo Clinic!!

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Replies to "@windwalker ...Hi Terri...It was a GREAT appointment with Dr L at Mayo!! He says he calls..."

@america. Hi, I am so delighted you went to Mayo and you saw Dr L. Thanks to Terri. He is one of the best and we are not rush into taking meds. I love the guy too because he knows exactly what he’s doing. I am excited that I am on my 19th day of my Tobramycin that he prescribed and will be done with the first month soo!!! Then I get a break for a month and start again. The good thing my body is adjusting well to the meds. I also have really bad reflux! Any suggestions? I bought the wedge mattress and it help but I do need more than that. Anyway good luck. Thanks