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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@ling123

@lorifilipek Sounds like you have been taking good care of yourself. I share some of your experience in that I have been diagnosed with MAC but am otherwise very healthy and active. I play tennis a few times a week all year round for the past 15 years. I have always coughed for the past 20+ years. Because I had been allergic to all kinds of things, my doctor and I just chalked it up to be the effect of allergies until one day a few years back, I coughed up a large amount of blood out of the blue. That was when MAC was diagnosed. I have chosen to not take the antibiotics that are prescribed for MAC treatment and opted for "wait and see" strategy out of the consideration that the antibiotics may or may not be effective for MAC but these drugs could potentially do a lot of harm to the internal organs as well as eye sight and hearing. My pulmonologist supports my decision. So far I have not coughed up blood anymore and have no trouble with lung capacity or fatigue. Other than the diagnosis that is printed in black and white in my medical records, I feel like a healthy person. I'm still coughing with excessive mucus sometimes. But that is to be expected because of my bronchiectasis, which is most likely the cause for my getting MAC. Based on your description of your current physical condition, I think you have made a very good choice. Thanks for sharing your story with us.

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Replies to "@lorifilipek Sounds like you have been taking good care of yourself. I share some of your..."

Thanks for writing all of this. I have coughed for years... thought it was allergies and sinus related. I have been a runner for 35 years... I used to run very fast but have really slowed down... I chalked this up to the fact that I am now 65 years old. The doctor finally paid attention when she heard my cough and ordered a chest xray and then a CT scan., I , too, have bronchiectasis and except for the cough I feel fine. How many years have you had the cough.. glad to hear you, too, feel well. The doctor advised me not to try the antibiotic treatments. Have you read any concrete reports on mortality with MAC?