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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)

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@windwalker

@flib I can totally relate to what you are saying. As if it isn't bad enough to have mac and cough a lot; the fatigue steals your life. I cannot tell you how many times I have turned down invites because I just didn't have the energy to pull myself together. As for talking.... After I went on disability, I was contacted and asked of I wanted to work from home as a call center person. I had to decline on the basis that after talking for a bit; it would result in me going into a coughing jag. I don't get around to seeing all of my family when I visit my home state because all of the running around wears me out. I have explained my disease, but because I don't look ill; I know they think I don't care enough about them to make the effort. We just have to take care of ourselves. Our fatigue is so fickle at times, you may wake up feeling decent and want a short visit after all. I think you had mentioned getting some ginsing, you may opt to take some to get you through the visit.

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Replies to "@flib I can totally relate to what you are saying. As if it isn't bad enough..."

aTerri I had to cancel.I was feeling on the edge of fainting. Everyone was polite if unconvinced. Taking care of oneself is a big job with this disease. I do take the ginsing-royal jelly everyday. It gives me a boost to get through the next thing. Thank you, you wise woman. Flib