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New Diagnosis of MAC/MAI & I'm scared
MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)Comment receiving replies
I was just diagnosed but it is not severe so we are just doing the Aerobika for 6 months and then another scat scan. I’ve had-bronchiectasis for 10 years. I will try anything not to be on the medications. The internet is scaring me. I read about a form of vitamin D to try. What is it and what dosage?
Replies to "I was just diagnosed but it is not severe so we are just doing the Aerobika..."
Hi @tinaesims, I'd like to add my welcome to @auntnanny's. I moved your messages to this discussion so you could also meet @sueinoregon who was also diagnosed with MAC. It is a scary time, but you'll find much support and incredible information from the members of this group.
Here are a few discussions that I recommend reading (and joining in):
- (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/
- You can feel better! https://connect.mayoclinic.org/discussion/you-can-feel-better/
- Bronchiectasis: New Diagnosis https://connect.mayoclinic.org/discussion/bronchiectasis-new-diagnosis/
- NEWCOMERS .. ONE EXPLANATION I FOUND ON MAC/MAI TO HELP YOU https://connect.mayoclinic.org/discussion/newcomers-one-explanation-i-found-on-macmai-to-help-you/
I encourage you to browse through all the discussions. See a list of all of them here: https://connect.mayoclinic.org/group/mac-bronchiectasis/
Keep asking questions and then ask some more.
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tinaesims I have had bronchiectasis for many years (I'm sure) but was finally diagnosed at Mayo's three years ago. I had just a bit of MAC but the pulmonologist there told me most everyone has some. He went on to say he might have too -- he doesn't know -- because he's had no reason to find out. He says unless it increases, we won't worry about it. Just thought I would share what little I know about slight cases of MAC. Perhaps he's wrong -- but that's what I was told.