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New Diagnosis of MAC/MAI & I'm scared

MAC & Bronchiectasis | Last Active: Oct 13, 2022 | Replies (349)
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@irene5

@sueinoregon First let me say “welcome to this site.” Like you I was in an emotional place about this diagnosis, especially since I, like you, have other things going on as well. This site will give you so much good informative and support. I have been so grateful for that and for the friendships I have made through this empathetic and knowledgeable forum. Because of that I am in a stronger psychological place than I was before finding this site. Each of us have our own personal journey with MAC. Attitude is everything Sue. We are all here for you, and if you go back and read previous posts you will find lots of answers. Our previous and present mentor and many members have been extremely helpful in providing good and helpful information and support about this disease. Welcome! (Irene5 from Connecticut)

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sueinoregon | @sueinoregon | Sep 13, 2018

Thank you Irene5. I will continue to read the posts. I deal with it OK sometimes, but .....it's like when you're sick you're not feeling well. I will look for more info about other treatments than the antibiotics. It is hard to reason that anything else could fully take the place of the antibiotics. On the other hand, if they help me fight this, I reason, perhaps I will feel better in the long run. Now I need to find out where the closest Mayo clinic is and if they accept Medicare assignment. I also made sure I got the best Medigap plan.
Another challenge is getting no empathy (not sympathy) from my husband. He doesn't say much about it except mention "I bet those antibiotics are going to be expensive" & complain I'm not "affectionate" just lately. Hope I didn't say too much. BUT, how it affects him seems to be his only concern. Anyone else made to feel this way???. I only bring it up because this seems to be what is upsetting me the most.
My sister died 3 years ago and her name was Irene. How ironic. I still miss her a great deal.
Thanks, SueinOregon

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