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Doctors who need help or maybe patients
Autoimmune Diseases | Last Active: Sep 8, 2018 | Replies (11)Comment receiving replies
@lioness l really don't know. I am checking out if the doctors in my state go to continue education classes in other states or even medical schools, teaching hospital or what have you because after 4 visits at the mayo clinic with the doct OP ed l had confidence with except the neurologist. When l first came in she thought she knew everything and what my doctors at home said was surely correct but as l kept going to the different doctors they kept ruling out everything they said especially me being mentally disturbed. I went to 3 psychiatrists there and she had me scheduled for a 4th one it when she found out about my portal vein and the shunt that was slightly leaking blood she couldn't say nothing. She was quiet as a mouth. Sl now these doctors here are crazy and the patient knows nothing. When you are rated a state with the worst medical system it's no wonder we don't get good medical care. There is only one doctor they have listed that treat patients with autoimmune encephalitis and shes horrible from references. Then my gp sends me to a transplant clinic and doesn't dr. which l know he's a hematologist but l was going to a plan old gastroenterologist. He retired and they referred me to another one and he sends me to the transplant clinic. I just have to keep praying and not let them upset me. At the end of the month I get a new gp. I hear he's good so we will see. I am praying.
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Maybe you already said, but what state are you in? Its sounds like you are in Texas. I go to the University. My RA doctor is SO UNSURE of what is wrong and how to treat me. She sent me over to the hospital for two infusions and I FELT SO MUCH BETTER. I told her this and could she schedule me again when it is appropriate? She didn't . She had sent me to an Oncologist also. I went for two times and finally asked...WHY are you doing the tests on me? Well, you have about 1% positive for Multiple Myloma. WOW! He said, I will check again in 1 Yr. I am 76 and I may not be here in one year. Further, my record already says, I will not do any Chemo or Radiation. So he probably figured, there was no money to spend on me. I have Excellent Insurance. The only doctor who has actually treated me well is my Spine Doctor. BUT, unless they tell you, you will not know the NEW LAW on this. THREE times in my back and three times in m neck. All different drugs. Then they determine which drug proved to do the best. I said, well none did not what. He said, I don't know. Maybe it is because I am at the University. I know they treat Charity cases. But, I am not one. OMG. 1 1/2 yrs there and no diagnosis. My pain is severe. The only drug the University approves for pain in Tramadol. I think it is time to move on to real doctors. What can I say. I have terrible pain. Thank God for the Hemp