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Glioblastoma Multiforme and Cognitive Loss

Brain Tumor | Last Active: Mar 10, 2020 | Replies (37)

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@tanyabaust

Unfortunately, this methylated GMB blog journey for me has not been shared with my family yet. I want to be positive 100% with my family and friends and don't want to bring anyone down, including myself. Life is too short to be depressed with the real world! It has made me so sad and a little depressed to communicate with this site. I have spend most of the day just watching tv until 5pm when I joined friends at the pool.

To be fair this may be the perfect communication for caregivers but I am not sure it's for me. I am far from perfect but if you think I am wrong please set me straight. I would like to share my experiences with other methylated GMB patients or how to help my carrgiver who is great but occassionally frustrated with pure miscommunications. Sometimes we argue when it's totally avoidable.

I will take anyone's advise to help me and my caregiver. I love him more than my life! Honestly I would forfeit my life if it would ease his future. We are 65/62.

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Replies to "Unfortunately, this methylated GMB blog journey for me has not been shared with my family yet...."

Hi @tanyabaust, I'd like to add my welcome. We have many patients living with cancer taking part in discussions on Connect, as well as caregivers. Your sharing your experiences about living with methylated GMB will be welcomed by other patients and caregivers alike.

I think you might also appreciate this discussion in the Cancer group:
- Talking Frankly about Living with Advanced Cancer https://connect.mayoclinic.org/discussion/talking-frankly-about-living-with-advanced-cancer/