Hi Scott, I just joined this group. It is interesting to read your posts especially about you lefty wife like me. I am on a similar journey. I had a glioblastoma (with a methylated marker) diagnosed and removed 9/25/2017. My original diagnosis was 12-15 months however once my methylated marker was discovered my longevity was extended to 23 - 25 months (8/2019-10/2019). Right around the corner! Ugh!

I did Radiation & Chemo following with a double blinded clinical trial (nivolumab) with an infusion every 28 days without an end for the infusions. I get very fatigued after the infusion and typically sleep for 10 - 20 hours after. Once I am rested I begin my "new normal" days which includes Bridge with girlfriends, gardening (can't do more than 2-3 hours without becoming over fatigued. When I start experiencing loss of language and my movements become sluggish I realize I've done too much. I was 60 when diagnosed and worked full time. Not feeling like I can contribute and communicate effectively is the hardest for me.

I am thankful to be healthy, at least what we call my "new healthy". I am happy and fortunate to still be here. My husband and I travel alot and do the things we failed to do in the past. While I have some cognitive loss I can communicate and function at 90%. I still drive and meet friends at various places within a 6 hour location.

I am very positive regardless of what is expected.