Hello @nursnis I am Scott while I do not have this diagnosis, my wife did have this. She survived for 14+ years after her surgery. I'd be willing to discuss how she was effected both in the areas of cognition and physically. They were very different from each other and were not always consistent over time.
That said, I do realize that each individual's journey in thier diagnosis and prognosis is unique, but I am always willing to share what I observed and learned along my wife's journey.