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← Return to Kleine-Levin Syndrome
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Brain & Nervous System | Last Active: Dec 6, 2019 | Replies (47)
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Hi, I know this is a late reply. I just saw a news report about this disease and I can't help but wonder if it's related to Lyme disease or co-infections? Also, have you done an oats test from great plains labs? This test will show all kinds of imbalances in the body.
Replies to "Hi, I know this is a late reply. I just saw a news report about this..."
Hi @vberkylynn -- Thanks for posting! I would like to add my welcome to Connect along with @lisalucier and other members. @jenniferhunter has a really good information post that includes links to testing for Lyme's disease and KLS a little earlier in this discussion that may also be helpful for members discussing KLS.
https://connect.mayoclinic.org/discussion/kleine-levin-syndrome-1/?pg=1#comment-283339
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Hi, @vberkylynn - welcome to Mayo Clinic Connect. According to the National Institutes of Health, this disease's symptoms may be related to malfunction of the hypothalamus and thalamus, parts of the brain that govern appetite and sleep. This page on their website offers additional helpful information on this condition https://www.ninds.nih.gov/Disorders/All-Disorders/Kleine-Levin-Syndrome-Information-Page.
Hoping that members in this discussion on KLS might have some thoughts on your question about any relationship to Lyme disease or co-infections, or whether they or their loved one with KLS have undergone an organic acids (OATS) test. Please meet @tiffanyb @momnxtdr @kaseykalb @johnbishop @jenniferhunter.
Wondering if you have Kleine Levin Syndrome or if someone you know has this diagnosis?