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Kleine-Levin Syndrome

Brain & Nervous System | Last Active: Dec 6, 2019 | Replies (47)

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@tiffanyb

We haven’t been to Mayo yet either, having a hard time getting in to see anyone. He was denied by psych and internal medicine, waiting in neuro and sleep. Our Children’s Hospital here in MN sends many labs to Mayo, my sons were. So glad art therapy is helping your son and daughter. My daughter (one of our trio) is really struggling, just shared with me her fears of him never being the same again. I’m reaching out to our care pastor at church, he’s also a hospital chaplain. Praying we can find support for her that’s meaningful.

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Replies to "We haven’t been to Mayo yet either, having a hard time getting in to see anyone...."

I think support for the sibs is really important. My daughter was actually subconsciously mad at her brother for abandoning her in episode. They are now playing together again. She does have one toe out the door and gets really upset if he breaks his diet in fear of another.