We have not been to Mayo Clinic. We've done everything here in Dallas. Our doctors have consulted with Drs at Mayo Clinic, Cleveland Clinic, and Stanford. It's such a rare condition that my son was the first diagnosis at our Children's hospital. We are lucky that our pediatrician is so proactive.

My son had some neurological issues of not being able to write or jump after a 4 month episode. Our neurologist suggested art therapy, tennis, and swimming because it uses both sides of the brain. It's been a month and he can write his name and made a Fathers Day card. We are also doing some physical therapy. He's not jumping yet but definitely bouncing.