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← Return to Kleine-Levin Syndrome
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Brain & Nervous System | Last Active: Dec 6, 2019 | Replies (47)
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Hello, @momnxtdr - I also wanted to thank you for sharing your story with your son and his Kleine Levin syndrome.
I believe that @tiffanyb had some questions about whether your son was being seen by a sleep or neurology specialist at Mayo Clinic.
Wondering more about your son and the art therapy he is doing with his sister. Have you felt that this therapy has had any positive impact on his condition?
Replies to "Hello, @momnxtdr - I also wanted to thank you for sharing your story with your son..."
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We have not been to Mayo Clinic. We've done everything here in Dallas. Our doctors have consulted with Drs at Mayo Clinic, Cleveland Clinic, and Stanford. It's such a rare condition that my son was the first diagnosis at our Children's hospital. We are lucky that our pediatrician is so proactive.
My son had some neurological issues of not being able to write or jump after a 4 month episode. Our neurologist suggested art therapy, tennis, and swimming because it uses both sides of the brain. It's been a month and he can write his name and made a Fathers Day card. We are also doing some physical therapy. He's not jumping yet but definitely bouncing.