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Kleine-Levin Syndrome

Brain & Nervous System | Last Active: Dec 6, 2019 | Replies (47)
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@momnxtdr

I see you. It's heartbreaking for all of us. I know several opt out of sleep studies because they give is scary info that is inconclusive. I'm not sure how I feel yet. Now that we have the diagnosis, quarterly may not be necessary.

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Replies to "I see you. It's heartbreaking for all of us. I know several opt out of sleep..."
Lisa Lucier, Moderator | @lisalucier | Jul 1, 2019

Hello, @momnxtdr - I also wanted to thank you for sharing your story with your son and his Kleine Levin syndrome.

I believe that @tiffanyb had some questions about whether your son was being seen by a sleep or neurology specialist at Mayo Clinic.

Wondering more about your son and the art therapy he is doing with his sister. Have you felt that this therapy has had any positive impact on his condition?

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