← Return to Kleine-Levin Syndrome

Discussion

Kleine-Levin Syndrome

Brain & Nervous System | Last Active: Dec 6, 2019 | Replies (47)

Comment receiving replies
@tiffanyb

Thank you for sharing your story, you are a wonderful mom! I feel I’m still in panic mode, not knowing how to help him yet. We just had an inland sleep study last night. They said he had many episodes of oxygen drops, not full on apnea, and many moments of wakefulness. He had a night terror caught on video, but he has done that his entire life! They found it surprising as it wasn’t during the part of Sleep he should do that. We haven’t had any guidance in what to start yet because they still want to run more tests. I hate watching him suffer and not at least bectrying sonething.

Jump to this post


Replies to "Thank you for sharing your story, you are a wonderful mom! I feel I’m still in..."

I see you. It's heartbreaking for all of us. I know several opt out of sleep studies because they give is scary info that is inconclusive. I'm not sure how I feel yet. Now that we have the diagnosis, quarterly may not be necessary.