← Return to Kleine-Levin Syndrome
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Brain & Nervous System | Last Active: Dec 6, 2019 | Replies (47)
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Replies to "Can I ask the dosage for the pre/probiotics? Are you working with a nutritionist? So glad..."
I am working with an immunologist not a Nutricianist. His prebiotic is called Ultra Flora Integrity by Metagenics. He also had one BioK probiotic yogurt a day and drinks UltraFlamX shake from Metagenics. He does take 5mg of melatonin before bed.
My son is 7. It started with EBV in December. The doctor expected him to be better in 10 days or so. When he continued to sleep for 15-20 hours we started seeing specialists. 13 doctors later, the immunologist referred him to a neurologist. That's who put him in the diet, probiotics, etc... that was 4 months in and with in 2 weeks he was out of episode. I am not sure if he had several or one long one. He was Homebound from school the entire 2nd semester.