← Return to Kleine-Levin Syndrome

Discussion

Kleine-Levin Syndrome

Brain & Nervous System | Last Active: Dec 6, 2019 | Replies (47)

Comment receiving replies
@tiffanyb

Can I ask the dosage for the pre/probiotics? Are you working with a nutritionist? So glad you have found him relief. How many episodes did he have?

Jump to this post


Replies to "Can I ask the dosage for the pre/probiotics? Are you working with a nutritionist? So glad..."

My son is 7. It started with EBV in December. The doctor expected him to be better in 10 days or so. When he continued to sleep for 15-20 hours we started seeing specialists. 13 doctors later, the immunologist referred him to a neurologist. That's who put him in the diet, probiotics, etc... that was 4 months in and with in 2 weeks he was out of episode. I am not sure if he had several or one long one. He was Homebound from school the entire 2nd semester.

I am working with an immunologist not a Nutricianist. His prebiotic is called Ultra Flora Integrity by Metagenics. He also had one BioK probiotic yogurt a day and drinks UltraFlamX shake from Metagenics. He does take 5mg of melatonin before bed.