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Kleine-Levin Syndrome

Brain & Nervous System | Last Active: Dec 6, 2019 | Replies (47)

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@lisalucier

Hi, @tiffanyb - welcome to Mayo Clinic Connect. With your son's ups and downs with the Kleine Levin syndrome, I can imagine it's been heartbreaking.

I'd like to introduce you to some other members who've participated in this discussion, like @momnxtdr @pbledso24 @jenniferhunter @kaseykalb @hopeful33250 and others, who may have some thoughts for you as you've not seen any recovery for your son in the last 2 weeks since his extreme fatigue and severe sense of derealization. Though @ihatediabetes' son has a different diagnosis, she may also have some perspective for you, and @Jody3 @barsta also may have some input.

Will you share more about the derealization you've noted in your son?

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Replies to "Hi, @tiffanyb - welcome to Mayo Clinic Connect. With your son's ups and downs with the..."

Thank you for that information!
My son feels like nothing is real, not him or anything around him. He says it feels like he’s in a movie. He says he feels like could do anything and it wouldn’t matter because he’s not real. He will actually pinch himself hard to see if he feels it. He gets startled very easily, too. This is totally not like him normally. He’s an outgoing, hilarious, empathetic, loves life kind of guy.