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← Return to Kleine-Levin Syndrome
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My 19 year old son started symptoms of KLS in Icti Oct 2018 while at college. He spent 2 weeks in the hospital, literally tested for everything! All was normal except elevated copper. He improved over three weeks, finished his semester at college, then relapsed. Same symptoms excessive sleep, feeling unreal, etc for two weeks again. He went back to college, took a full load of 16 credits, got all A’s, and moved home for summer. Once again, extreme fatigue (worse than ever) and severe sense of derealization. It’s been 2 weeks today and no sign of recovery yet. It’s SO terrifying and heartbreaking. There has to be hope, a chance at thus stopping and not happening again.
Replies to "My 19 year old son started symptoms of KLS in Icti Oct 2018 while at college...."
I'm sorry to hear that son is in episode. We've had great luck staying out of episode by focusing on my son's gut health. He is on the Keto diet, takes prebiotics and probiotics. He also sees an Accupuncturist.
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Hi, @tiffanyb - welcome to Mayo Clinic Connect. With your son's ups and downs with the Kleine Levin syndrome, I can imagine it's been heartbreaking.
I'd like to introduce you to some other members who've participated in this discussion, like @momnxtdr @pbledso24 @jenniferhunter @kaseykalb @hopeful33250 and others, who may have some thoughts for you as you've not seen any recovery for your son in the last 2 weeks since his extreme fatigue and severe sense of derealization. Though @ihatediabetes' son has a different diagnosis, she may also have some perspective for you, and @Jody3 @barsta also may have some input.
Will you share more about the derealization you've noted in your son?