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Kleine-Levin Syndrome

Brain & Nervous System | Last Active: Dec 6, 2019 | Replies (47)

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@lisalucier

Hi, @momnxtdr - You may notice I combined your discussion with an existing one titled, "Kleine-Levin Syndrome." I did this so you could meet a few of the other members who have posted about this diagnosis. If you are responding by email you can click on VIEW & REPLY to see where your post is and to read through some of the other posts made by members on this topic.

Hoping that @kaseykalb @johnbishop @hopeful33250 will return and offer their support and talk about any experience with this disease, as it applies. @davidwhitehurstbrown @Jody3 @barsta @jenniferhunter may also have some thoughts to offer.

What would you say is your biggest concern for your 7-year-old son at this point, @momnxtdr - missing school? low energy? something else?

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Replies to "Hi, @momnxtdr - You may notice I combined your discussion with an existing one titled, "Kleine-Levin..."

Thank you for asking. I hadn’t thought of it in those terms before. My biggest concern is that I want him to have a normal life. I guess it’s social emotional. Academically, he has a Homebound teacher who comes twice a week. He has already passed the test to pass to second grade next year. I know he misses his friendships, teacher, sports, etc.. He slept through Spring Break. These things break my heart for him and I know it makes him feel sad. We are focusing on good diet and gut health. I also am concerned about my other 4 kids because it’s changed our family dynamics. He’s the youngest and they worry about him. They also miss him because he’s asleep most of the time.