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@hopeful33250

Hello @tigertoo

I would like to join Lisa (@lisalucier) in welcoming you to Mayo Connect. The internal shakiness/tremors is often related to Parkinson's (PD). I do understand that your neurologist has ruled PD out but you might keep this diagnosis in the back of your mind if no other diagnosis materializes. I had symptoms of PD for almost 20 years and saw a number of doctors before a definitive diagnosis was made. PD is diagnosed in a rather peculiar way in that if nothing else is the obvious diagnosis the doctor will often give you some carbidopa/levodopa and see if that helps the symptoms. If it does help, then they decide you have PD. However, I'm not a medical professional and I can only share my own experiences.

Are you feeling any better with the neurontin and the Vitamin B therapy? Do you have any other symptoms that relate to balance, unsteady gait, low volume voice, constipation, etc.?

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Replies to "Hello @tigertoo I would like to join Lisa (@lisalucier) in welcoming you to Mayo Connect. The..."

I am sorry to hear about your PD, but Dystonia is a tough road to hoe. I am in the medical field and I know Dystonia like the back of my hand. The disease treats everyone differently and YES, sometimes you wish it would kill you. You have a disease that everyone has heard about, knows about, unliike Dystonia, where doctors don't undertstand the disease. Being born with this disease...I know it well.