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Monthly shaking episodes that continue to progress
Brain & Nervous System | Last Active: Apr 13, 2023 | Replies (65)Comment receiving replies
My internal vibrating or shakiness started spring of last year and has only gotten worse since. I finally went to the doctor who sent me to a neurologist. I have undergone several tests per the neurologist. I have been diagnosed with POTS and Vitamin B deficiency so far as a result of the tests. I am awaiting results of blood tests to rule out thyroid issues, Rocky Mountain Spotted fever and Lymes Disease. I am having a nerve conduction test and possibly an EMG next week. The neurologist has already decided that I don't have Parkinson's, MS or anxiety disorder, although the internal tremors do cause me some anxiety. I'm an otherwise healthy 66 year old retired nurse with no medical history except for a stent of PVCs which lasted 18 months which stopped a few years ago. The Dr. has started me on Neurontin and Vitamin B therapy. I am having no pain but this condition is clearly NOT normal. I will check this board from time to time and will keep it updated as to my situation.
Replies to "My internal vibrating or shakiness started spring of last year and has only gotten worse since...."
Hello @tigertoo
I would like to join Lisa (@lisalucier) in welcoming you to Mayo Connect. The internal shakiness/tremors is often related to Parkinson's (PD). I do understand that your neurologist has ruled PD out but you might keep this diagnosis in the back of your mind if no other diagnosis materializes. I had symptoms of PD for almost 20 years and saw a number of doctors before a definitive diagnosis was made. PD is diagnosed in a rather peculiar way in that if nothing else is the obvious diagnosis the doctor will often give you some carbidopa/levodopa and see if that helps the symptoms. If it does help, then they decide you have PD. However, I'm not a medical professional and I can only share my own experiences.
Are you feeling any better with the neurontin and the Vitamin B therapy? Do you have any other symptoms that relate to balance, unsteady gait, low volume voice, constipation, etc.?
I have internal shaking I call it internal vibrations I am going to see a movement dr at u of m
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Hi, @tigertoo, and welcome to Mayo Clinic Connect. Thanks for sharing some of your situation. It sounds as though you are starting to get some answers with the POTS and Vitamin B deficiency diagnoses, but are still hoping to get more information on the internal vibrating or shakiness you've experienced.
I'd like you to meet some of the others in this discussion, such as @oakbourne @cathy514 @jubilee @hopeful33250 @1000016352 and others, who may have some thoughts for you as you wait for test results.
How are these vibrations and shakiness affecting your day-to-day life, @tigertoo?