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@jubilee

It might help to look through the neurosymptoms.org website at http://www.neurosymptoms.org/#. You'll see many, if not all, of your symptoms there and good information to explain why this is real and not all in your head, even though the tests show you are the picture of health. I am kind of where you are, maybe just a little bit further along in finding my treatment. I was diagnosed with dystonia 10 years ago, then re-evaluated last month by a movement disorders specialist after additional types of symptoms began to develop (jerking, twitching, etc.). This time around I had more extensive testing including a brain MRI and was diagnosed with "functional movement disorder". On the one hand I was delighted to learn I did not have a brain tumor or any other organic problems of the brain, but it also meant I still do have problems with my nervous system. As my neurologists explained, the brain has hardware and software, and in my case I have a software problem. The good news is there is treatment for functional nervous disorders and prognosis for getting better is encouraging with the right treatment. It has been challenging to wrap my mind around this new diagnosis, but reading the information at the neurosymptoms.org website more than once has greatly helped me understand and accept all of this.

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Replies to "It might help to look through the neurosymptoms.org website at http://www.neurosymptoms.org/#. You'll see many, if not..."

Thank you and everyone, the kindness of this group is amazing, me pcp I have had for 16 years doesn't understand and keeps thinking its anxiety due to the fall and injuries
it's not anxiety it's internal vibrations? tinnitus insomnia cognitive problems , dry eyes back hip knee and neck pain and left arm goes numb pinched nerve at c 5 6 7 and L5 but still shakes while numb, i pray and cry a lot , I just want to be me again