I an beginning to think if you don't live by a mayo clinic and don't have out of state coverage there is no resolve I don't know where or how to get help and living this way is miserable and yes Drs dismiss me as psyciatric but psychiatric meds make me worse and may have been the cause from what I have read I just don't know what to do I have horrible tinnitis I need a good ent I am so tired of Drs saying its depression or anxiety without testing I would not be depressed if I could get better even the therapist says he thinks it's some kind of nerve damage or from back epidural as insomnia began 1 day after spine epidural for I joint dysfunction he said contact mayo but I am not financially able to fly to another state get accomadations and pay mayo any suggestions I am desperate for help I want my life back so badly, I am stuck in the house due to embarrassment and pain, I can only drive short distances my left arm goes numb all day every day I have exhausted all rides to the Drs I don't know what to do next, I am praying u o m can help me but that's months away

Cathy, trauma can cause Dystonia. I have spoken to many people who have Dystonia and they said it was from a fall, car accident and other mishaps. They too said it did not run in their family. Blacks don't get this disease unless they have a trauma event. I am hoping for God's Sake you don't have Dystonia, but it sure sounds like Dystonia. Many doctors don't know what it is, so don't waste your valuable time with them. I wish you could see Dr. Arce. People far and wide see him from America, Australia, England and other countries. He's the expert on Dystonia all across the country and world. I know he could help you. I adore him.