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Monthly shaking episodes that continue to progress. Anyone else?
Brain & Nervous System | Last Active: 3 days ago | Replies (67)Comment receiving replies
Hi Cathy, my mother had essential tremors as a teenager and I noticed it as a kid. Her hands would tremor whenever she got stressed or nervous. She told me she would hide her hands because of embarassment. I had it, but it went away. My problems are Spasmodic Torticollis along with Oral Mandibular problems. This disease can effect every muscle in the body. Have you checked to see if anyone in your family has this disorder - mother, father, grandparents, greatgrand parents, cousins, and any other family members way back? It only has to take one parent to pass this monster on to you. Whenever my MOM got nervous, she would light up to smoke or get gum to chew. Her hands would tremor when nervous. She would talk non-stop because it relaxed her muscles in the oral cavity. She had the oral mandibular problem plus her hands shook badly. All ten of my aunts and uncles had this monster. I always thought "why are my reatives so nervous?" They could not help it. It was the DYT1 gene!! This is totally genetic on my part. I'm related to the famous Ted Tuner and his foot would pop up when stressed. My cousins have essential tremors also. Check out your realtives. Hope I have helped you any way. Dorothy
Replies to "Hi Cathy, my mother had essential tremors as a teenager and I noticed it as a..."
@oakbourne
Hi...
Ive got essential tremors too...thanks Mom!
She shook so bad both her hands/head. She could not even write her name before she died & her head shaking became so bad that she would have horrible muscle spasms in her neck & upper back.
I was taking propranolol, a beta blocker, to treat the tremors & i would say it worked well.
Then I was diagnosed w/ myasthenia gravis & guess what medication is contraindicated w/ MG...Propranolol (beta blockers) ie. Anything that causes smooth muscle relaxation
I stopped it & started shaking like a leaf again, even my head this time🥺
I spoke to my neurologist & she said I could cont it & she would monitor my muscle strength
Anyhow, MG affects your mouth (swallowing), chewing, it can mk it hard to hold up your head, give you double & blurry vision + severe weakness of upper/lower extremities. I was finally diagnosed this past Jan. & by then I couldnt even button a button.
Im a retired RN & i can attest to the fact that the neuro system is quite complex.
If you can, id keep a record of what you are doing &how you feel when these scarey symptoms occur bc 4 me w/ MG surgery & anxiety exacerbated my disorder so there may be a trigger in your case to?
Good luck🙏
Michelle
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thank you Dorothy I don't have any relatives with even a similar condition this all started after a fall on ice and hip arthoscopy, was given Zoloft for depression and trazadone and when it didn't work lunesta for insomnia which began after a back epidural , I have a low tolerance to medicines and many side effects but no one seems to be able to help me I have a Bachelors degree and can't write spell , I wake up every morning shaking internally and externaly and teeth rattle sometimes stuttering hands shake the worst and I feel sick to my stomach feeling something is wrong but can't get diagnosed