Hi, @cathy514 - Being miserable for over a year is very hard. The tremors resembling Parkinson's; not being able to spell, add or subtract; and the difficulty writing must be very challenging.

Since you don't live near Mayo Clinic in AZ, MN or FL, you might check out the Mayo Clinic Care Network, which does have a member in Michigan: https://www.mayoclinic.org/about-mayo-clinic/care-network/members

I'd also like to invite into this conversation @hopeful33250 @pattywelch @kati612 @ggopher @susan62. I trust they may have some input on your situation, @cathy514.

Since you do have an appointment with University of Michigan in January and are feeling you could use help sooner, do they have a system whereby you can call and check in for any cancelled appointments or where you can sit in the lobby and be seen if someone does not show for an appointment?

Contact DMRF and other movement disorder support groups. Some people who can't pay can be helped with Botox for free. Look up dystonia and you will find at least two movement disorder support groups. Hope that helps. I want to help everybody with this monster disease.

A movementy disorder neurologist is the only way to go. There are more of them than in the past. You may have to travel to a larger town or city and you may find one. Good Luck. A movement disorder neurologist is the only way to go. Dorothy