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Monthly shaking episodes that continue to progress
Brain & Nervous System | Last Active: Apr 13, 2023 | Replies (65)Comment receiving replies
omg I have had what I call internal vibrations that rarely go away, I was told its anxiety by 2 neurologist but it's not anxiety it's tremors of some kind that resemble Parkinson's the internal vibrations never go away I wake up with them and tremor like shaking hands I can't spell or add and subtract I takes 2-7 times to address a envelope correctly I have insomnia over a year and I cannot write 1/4 my hand will not do I can try and try and my hand will not do it Drs dismiss it as anxiety I had Meg nerve pinched at L5 and c5 c6 c7 I see u of m dr neurosurgeon in January long wait but hope to get help I am tired all the time babe back hip and neck pain every day nurse said looks like dystonia but Drs say anxiety and dismiss my concerns was told see a psychiatrist he and therapist said looks like nerve damage or damage from back epidural as all symptoms came after it, hoping to get answers in January this is a miserable condition my daughters dr said he thinks fibermyalgia but no test for it I can't get help or resolve I have horrible tinnitus my teeth chatter and dry eyes and cannot see at night to drive I am scared and disappointed with Drs I just want to be me and get my life back
Replies to "omg I have had what I call internal vibrations that rarely go away, I was told..."
Hello @cathy514
I appreciate Lisa, @lisalucier, inviting me to this conversation regarding your tremors. I can understand your concern about not getting in to see a U of Mich. doctor until January. I live in SE Michigan and I do see a couple of doctors at U of M and they will allow you to call back (even on a daily basis) to see if there have been any cancellations for an earlier appointment. As Lisa mentioned in her post, there are Mayo affiliated hospitals in Michigan. One of those is Sparrow Hospital and they have several different campuses. Here is a link to their website, https://www.sparrow.org/.
I have Parkinson's however, I'm in the rare 15% of PD patients who don't experience tremors, for which I'm thankful.
There are many causes for tremors, other than PD. So a good movement disorder specialist would be a good idea. Have you previously seen a movement disorder specialist? They are neurologists, but they have have special training in movement disorders like Parkinson's, etc. Has any doctor tried any meds to help with the tremors?
Did you ever take Fluoroquinolone antibiotics like levaquin or cipro? These can be very toxic to some people. Some of the side effects are like you describe and can last for years.If so, There s a Facebook group called Fluoroquinolone Toxicity group. Join us.
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Cathy, doctors don't know everything. Some are quite bad. When a doctor does not know something, they call it psychological. It's all in your head, you need a man or you need sex. Yes, I've heard it all and it's demeaning and hateful. Sometimes they are ignorant and rude. Don't walk away, run away from them. It's not in your head. That's Neanderthal Thinking. Caveman talking!