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Diagnoses of PBC not making sense anymore

Autoimmune Diseases | Last Active: Feb 20, 2019 | Replies (33)

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@oldkarl

@peabody88 Hi, fellow data cruncher. First, very happy to see your response, and I know your feelings well. And I know my concerns are not all in my head because the lab and observation reports disclose the awful truth. The sFLC(C) assay says I have excess light chain protein, almost double the reference range for Kappa protein. My 24 hour protein collection showed 1.225 grams of protein in the day of urine collection, the RR (Reference Range} tops out at .5. Dr. Jeanette Nee of Las Vegas Sunrise and other Cardiologists have put 24 stents in my heart and mammary arteries over the years, and Insurance has paid it without question. My arms and legs and forehead are covered with macular skin rash, looks like #####. My toes and eyelids turn purple or black. My nails are torn and brittle. My pancreas, heart, lungs, thyroid, liver, prostate, bladder, spleen are all enlarged. Cancer in my Thyroid. Cancer in my prostate. Samaritan imagery shows "amorphous white matter deposit in cerebrum cortex." That is just the beginning. But congratulations on building your spreadsheet. That spreadsheet will be your best answer to the nonsense of "I did not see anything unusual."

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Replies to "@peabody88 Hi, fellow data cruncher. First, very happy to see your response, and I know your..."

@oldkarl - Sorry, my question may have been misleading...I was asking more in general I suppose about the "all in your head." You clearly had/have reason to believe it wasn't "all in your head" and to keep pursuing an answer. I definitely have less obvious, objective symptoms and not as markedly abnormal abnormalities in my test results, and a great deal less confidence. After the gastroenterologist told me my moderate gastritis could be caused by anxiety, I've developed (ironically) an anxiety -- almost paranoia -- that maybe I am imagining or over exaggerating my problems, and there really is nothing wrong. So again, how did you keep positive in the face of constant skepticism and doubt?