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Diagnoses of PBC not making sense anymore
Autoimmune Diseases | Last Active: Feb 20, 2019 | Replies (33)Comment receiving replies
I don't believe they have communicated with each other, the GP said this isn't my area and sent me back to my gastro who is treating the PBC, who then said the liver is his specialty so I should go to a rheumatologist. He redid the blood work to verify that the RNP number was right on the first blood test, and ordered other tests. He said my blood work looks good except for the 6.7 RNP number. I also had elevated uric acid. So he verified the RNP is indeed elevated, and then said I don't know why, lets wait 4 months and retest. He did order another blood test for muscle enzymes. We should have results next week. I'm not sure what that will show.
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@lcmcphee
I can understand how confusing this must be for you as well as your group of specialists. Many of our members keep track of their lab results, x-rays, MRIs and other diagnostic results. They keep these in a binder and take it with them to each appointment. Nowadays, with electronic medical records, your doctors may be communicating with each other in that manner, but it still might be a good idea for you to keep track of all of your test results as well. You might be able to pick up changes that your doctors might miss in their hurried practices.