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lcmcphee (@lcmcphee)

Diagnoses of PBC not making sense anymore

Autoimmune Diseases | Last Active: Feb 20, 2019 | Replies (33)

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@oldkarl

@usafretired15 You present a very interesting picture to me; a lot like mine, with a couple significant exceptions. I am 30 or so years older, and for significant reasons, I have never been pregnant. … Just Male. But I had six sisters and one brother, and almost every element you pose, at least one of us has had or does have it, plus a lot more elements in autoimmune light chain dyscrasia of some sort. Lupus, Crohn's, nickel-sized rashes (Macular Skin) with furrows, bleeding and with infection, Arthritis, Carpal tunnel, tarsal tunnel, positive ANA, LECT2, Apolipoprotein, Gelsolin, AL, etc., etc. I suggest you ask your doctor to start looking at liver and kidney protein issues such as Amyloidosis, Have the doc get in touch with Mayo Amyloidosis Clinic, and watch Dr. Martha Grogan's videos on diagnosing Amyloidosis. If the doctor does, I know a few hundred other folks who who like to have that doc's name. My first clue was that my organs started going bad. Heart, lungs, kidneys, liver, spleen, thyroid, brain, spine. Even my teeth started cracking and breaking off. One doctor group diagnosed it in 20 minutes. https://bit.Ly/1w7j4j8 "Amyloid and Old Karl There is a list of Dr Grogan's suggest tests in there.

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Replies to "@usafretired15 You present a very interesting picture to me; a lot like mine, with a couple..."

@usafretired15 One thing I forgot to mention. And then the macular, skin looks a lot like melanoma, But it looks like the hashtag sign, or a plowed field, #####, with the furrows at 30/60 degree angles. Melanoma typically is not hashtag.

Karl, Thank you for sharing your story. And, what a story it is. Are you sure you have never been pregnant? Lol Allmkidding aside, very interesting. I will check out the videos you referenced. Thanks again.