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Diagnoses of PBC not making sense anymore

Autoimmune Diseases | Last Active: Feb 20, 2019 | Replies (33)

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@rosemarya

@lcmcphee , I join John in extending a welcome to you. I see that you mentioned that you were diagnosed with PBC in Dec 2017. Some of your symptoms (fatigue and joint pain and swelling) are also mentioned in the link for PBC that John has included in his message.

I understand the frustration that you are experiencing. I was diagnosed with a liver disease PSC (Primary sclerosing cholangitis) It is also a disease that affects the bile ducts with some connection to autoimmune condition. My PCP, sent me to a gastroenterologist (GI) for treatment of the liver disease. Are you being treated/monitored by a GI for your PSC?

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Replies to "@lcmcphee , I join John in extending a welcome to you. I see that you mentioned..."

Yes my gastro is also a liver expert. I think the RMP number has triggered the need for more testing. They don’t believe it is from the PBC as my liver enzymes have been good since starting the ursdiol