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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)
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@johnbishop

@jlander, Glad you found this discussion and posted so that you can meet other members like @runwthme, @txbren, @jcmoffatt, @hotfooted, @emfm4me and other members who may be able to offer some suggestions. You might also find the following resources helpful:

- National Organization for Rare Disorders - Erythromelalgia: https://rarediseases.org/rare-diseases/erythromelalgia/
- Erythromelalgia Clinic in Minnesota - Overview: https://www.mayoclinic.org/departments-centers/erythromelalgia-clinic-in-minnesota/overview/ovc-20421220

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Replies to "@jlander, Glad you found this discussion and posted so that you can meet other members like..."
revisl | @revisl | Mar 31, 2021

I am new to disease and pretty desperate. I understand there is no cure - only management, and saw a video by dr. Davis who mentioned topical treatment - I am in the Houston area and it is pretty desolate here, despite our large medical center. I am not a good candidate for the Gabanpentins and Lyricas of the world but probably could tolerate them in topical form. Can anybody suggest anything ?

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