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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@sunnyflower

Wow, I can't believe it, I'm so glad I mentioned it. I used to watch this show called, "Monsters Inside Me". It was very good and very interesting and I think pretty legitimate. If you get a chance to see it you can probably find it somewhere because I don't think it's currently running live. But there were a like a million episodes. I watched it over the years and there was a lot of science behind it it seemed.

Since it take so long to get in to see a doctor nowadays with Covid-19 and lower staff, it would seem wise for you to get your primary care doctor to write a referral and ask if she/he can write it for urgent because of the amount of problems you are having. And then I would stay on top of everything and maybe once a week call the Infectious Disease practice to see if they received your referral yet. Often times for me they will say no and then I will ask them if they can check on it for me with my primary insurance. I also look to see who is a preferred provider and then I look at their bios. I look at where they went to school and especially how long they have been in practice. I tried to find the one who has been in practice the longest and has some good reviews. Have that name address and fax number ready so that when you send a message to your primary care doctor asking for the referrals, include the infectious disease provider's name address phone and fax number and that will make it much easier and expedite the process. If for some reason the infectious disease provider you select does not appear on the referral you can still ask for that provider when you speak to the practice.

I wish you all the best, Sunnyflower

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Replies to "Wow, I can't believe it, I'm so glad I mentioned it. I used to watch this..."

@sunnyflower
Wow, Sunny, it's impressive to hear from a pro who knows the real score when it comes to working the system. You've definitely been around the block more than once. You should write a book! Best, Hank

@sunnyflower I just finished watching an episode of Monsters Inside Me! It’s on one of our Time Warner/Spectrum cable channels. They are so interesting