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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: 6 days ago | Replies (297)

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@sunnyflower

Hi Jeanine, wow your story grips my heart! The piece about travel to Alaska is a very likely key I feel. Have you seen an Infectious Disease doctor? They would be the ones to know which rare and out-of-the-box parasites and infections, virus is excetera to look for and to test for. I work for 20 years in healthcare and being a patient who has some rare diseases and a ton of specialist, really believe in specialty medicine. I hope and pray you can see infectious disease. They would be the ones to know which bacteria, viruses, parasites are particular to Alaska that are not where you live.

I will uphold you in prayer that you can be officially diagnosed and that, that would help to know what if any treatment could benefit you.

Take Good Care and many blessings, Sunny flower

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Replies to "Hi Jeanine, wow your story grips my heart! The piece about travel to Alaska is a..."

Thank you so much. Believe it or not, that is the One doctor I have not seen. When I get up the energy to pursue a new dr. That will be the one. In the back of my mine I’ve thought about that trip and picking up something. Again, thank you.