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Anyone out there with Erythromelalgia?
Autoimmune Diseases | Last Active: May 12, 2024 | Replies (298)Comment receiving replies
@runwthme
I am sorry to hear about this disaster. Especially with all that you are dealing with in terms of your health issues.
Regarding those, you had said this all hit you overnight. So you went from a person without any serious health issues to one with a significant set of them. That is so strange. Any idea why? I mean were there any unusual things which had happened to you physically before this happened? Can you remember any possible exposure to toxins, either thru breathing or in food, drink, etc.? Did you have any recent surgeries? Recent shots, innoculations? Do you live near anything unusual, electric power lines, microwave transmitters, anything else out of the ordinary? I am sure you must have been asked all this before so forgive me if this is old ground. Just looking for some sort of reference point. Seems unfathomable for all of this to hit you at once out of the blue.
I hope you can develop some sense of stability around you as you go through this huge ordeal. I don't want to get you into trouble and I am not familiar with Texas laws, but if you are comfortable and it is available, you may want to consider either medical marijuana and/or kratom, to help you deal with the pain until you are able to transition back home. You need something to help even the keel for you in this stressful moment of you life.
All my best to you, Hank
Replies to "@runwthme I am sorry to hear about this disaster. Especially with all that you are dealing..."
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I went from running marathons,hence runwthme, to one day waking up to severe gerd. And from there upper stomach pain, sore joints, swollen feet, etc, etc. it all has been explained as idiopathic. Some say most likely a virus. The only thing we can think of is several months before, we took a 2 week trip to Alaska. I ate so much king crab I haven’t had any since.😉 I’ve had so many blood tests quest has more of my blood then me. Included metal toxins, etc. including antifreeze. Haha, my husband laughed at that one. These groups have definitely helped as there seems to be a lot of ppl with illnesses that can’t be explained. I use to be an analyst, so at the beginning I logged every little detail and just had to figure out what was happening. I have given up on that quest for now. I see a pain specialist (the most difficult ordeal) and really like him. I’ve read a lot about kratom, and makes me nervous thinking about taking it. Most of my Drs are in the medical center in Houston, but still a matter of finding the right fit. I don’t think Texas will ever allow medical marijuana, in my opinion. Believe me, I have explored every type of explanation for this because it just seems impossible, so many rare conditions. Thank you for your reply and I’m certainly open to hear any ideas....jeanine