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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: Apr 27 8:41pm | Replies (297)

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@runwthme

Hi, I haven’t been on in awhile. I will scroll thru and look at the replies. Sunday, over night a small clamp came loose under our sink and flooded our whole house( ranch) and every room in the house had water damage. So, we are living in a hotel atm for at least a month. And as we all know stress can produce flares, and is. Thank you so much for checking in, That’s so kind, and for everyone’s response to my first post. I tend to have an “anxious” personality, but thankfully my husband is as calm as it gets.😉

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Replies to "Hi, I haven’t been on in awhile. I will scroll thru and look at the replies...."

@runwthme
I am sorry to hear about this disaster. Especially with all that you are dealing with in terms of your health issues.

Regarding those, you had said this all hit you overnight. So you went from a person without any serious health issues to one with a significant set of them. That is so strange. Any idea why? I mean were there any unusual things which had happened to you physically before this happened? Can you remember any possible exposure to toxins, either thru breathing or in food, drink, etc.? Did you have any recent surgeries? Recent shots, innoculations? Do you live near anything unusual, electric power lines, microwave transmitters, anything else out of the ordinary? I am sure you must have been asked all this before so forgive me if this is old ground. Just looking for some sort of reference point. Seems unfathomable for all of this to hit you at once out of the blue.

I hope you can develop some sense of stability around you as you go through this huge ordeal. I don't want to get you into trouble and I am not familiar with Texas laws, but if you are comfortable and it is available, you may want to consider either medical marijuana and/or kratom, to help you deal with the pain until you are able to transition back home. You need something to help even the keel for you in this stressful moment of you life.

All my best to you, Hank

Dear runwthme, I am so sorry to hear about your flood! I hope and will pray for zero body symptoms while dead with this extra stress. Don't forget to take good care of yourself! Warmest wishes, Sunnyflower 🙏😊

Hi,
Read your post, and feel bad you have health issues, and now dealing with a flood.
being a survivor of the Wolsey canyon fire, I can understand what you are going thru.
Most important call insurance company, take a lot of pictures, and insist you get new wallboard/baseboards, as moisture gets trapped inside of walls and then mold starts.
If your furniture is ruined get outside quickly, as water can and will penetrate the wood, fabric,etc., and cause allergies from the chemicals used to stain wood, and also today’s fabrics have protective chemicals. I could write a book on what to expect when dealing with insurance companies.
Most important let them know you have health issues, so they refrain from their pressure tactics.
With a house flood, I doubt you will be back home in 30 days.
Maybe rent a home/apartment is a better choice.
Wish you well, and try not to stress, I know easier said then done.
Funcountess