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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@hotfooted

After reading others experiences with Erythromelalgia and already dealing with it in my feet, I guess this is where I need to post what's happening with me now. I have tried to ignore the possibility of ER moving to other parts of my body.... preferring to think of my problems as neuropathy related. I have not brought any changes up to my doctor, but have been trying to find someone who could do myofascial massage for my feet, legs, hands, and arm pain. Last week we drove over 100 miles to have deep tissue massage for one hour on mainly my extremities. That night I slept so well, altho with many large torso jerks and leg kicks.. Next day I felt wonderful and walked around the house, just enjoyed feeling so great.. but now the numbness and heaviness in my limbs and even my head between my ears feels rather strange.. I'm guessing the queasy tummy is only my anxiety over what might be happening to me now.. I feel weepy, too.. Thank God for my husband.. he's so understanding and helpful.. He suggested that I needed to move more, not on my feet, but pedal on the exercycle.. get on the balance thing on the floor some.. I did pedal 3 miles already... Thank you for any suggestions...

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Replies to "After reading others experiences with Erythromelalgia and already dealing with it in my feet, I guess..."

That's a promising update, @hotfooted. Moving more sounds like it's working for you. Do you like to swim?
In the meantime, keep pedalling and keep us posted.

Dearest hotfooted, my heart aches for what you are going through. I am very grateful that you have a husband like he is. I do too. It's rare! I know what anxiety feels like and it's horrible! I also am way too familiar with what it feels like to be weepy. I will uphold you in prayer and ask God to comfort and encourage you and give you His peace through Christ which surpasses human understanding. That's what works for me gets me through the many fires we walk through in our lives. Many blessings, Sunnyflower