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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: Mar 28 9:59pm | Replies (283)

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@januaryjane

Hi,Im getting ready to talk to a Dr. for the first time about my Erythromelalgia symptoms. He is a highly recommended Rheumatologist. My appointment is for other for other concerns,but have figured out these symptoms since then. Sorry if this is all over the place..but should I contact him and see if he is familiar with this beforehand? I think i should, but not sure how to go about it. Also, i get very tired and have trouble concentrating at the appointment. What can i do to prepare...as in writing things down to remember and such or even physically? Any advice would be great, thanks.

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Replies to "Hi,Im getting ready to talk to a Dr. for the first time about my Erythromelalgia symptoms...."

@januaryjane I agree with the suggestions given by @emfm4me and @lois6524 . Having things written down and photographs will help a great deal. Also take someone with you. Someone who knows you and will be your advocate. And don’t let yourself be afraid of the doctor—he is here to help you. I know you’ll do well. Can you follow everyone’s suggestions?