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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)
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@januaryjane

Yes, im in the process. Thanks. May i ask how long it took to diagnose? Was it ever misdiagnosed??

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Replies to "Yes, im in the process. Thanks. May i ask how long it took to diagnose? Was..."
emfm4me | @emfm4me | Feb 28, 2020

For me it took a few months. At first, I was diagnosed with Raynaud’s Syndrome. My first rheumatologist was less experienced. I didn’t agree with the diagnosis, and due to other health issues, sought a consult at Mayo.

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