← Return to Anyone out there with Erythromelalgia?

Discussion

Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

Comment receiving replies
@januaryjane

Are you diagnosed? Yes, mine is triggered by those too. What are your face and ear flares like??

Jump to this post


Replies to "Are you diagnosed? Yes, mine is triggered by those too. What are your face and ear..."

Yes, I was diagnosed by a rheumatologist at Mayo Clinic, who I still see. The face/ear flares are similar to the ones in my feet. There’s redness, burning, and skin is very hot to the touch. Sometimes there’s some very slight swelling. I used to get swelling in my feet to the point where I could not walk. If you haven’t been diagnosed yet, take photos of the flares to bring to your doctor. It’s helpful for diagnosis. Hope this helps you.