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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: Apr 27 8:41pm | Replies (297)
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@januaryjane

Does anyone have flares in the face or ears? Or hands?? I see some affected by their feet, which i have, but face,ears, and hands are more often for me.

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emfm4me | @emfm4me | Feb 18, 2020

Hello januaryjane, I do have flare in my hands, face, and ears from time to time. Usually they are in my feet. My symptoms have improved since I began taking Mexiletine. But I have found that certain foods, conditions, and stress/illness can still trigger flares.

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dlsmikus | @dlsmikus | Mar 15, 2023

I get strong burning in my face and a pressure in ears that makes me very unsteady. I have taken to walking with a cane. I also burning over my entire body, but my face and ears are the worst. I am on 1200 mg of Gabapentin.

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