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txbren (@txbren)

Erythromelalgia

Autoimmune Diseases | Last Active: Apr 11 10:16am | Replies (145)

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@januaryjane

I get hot cheeks, ears, hands and at times feet. I havent been diagnosed. What is the procedure for this? Ive been to drs, basically blaming these "rashes" on a virus. They look no further into it. I feel quite ill getting these flares and cant do much. Im not sure if Erythromelalgia is what i have, but id like to get to the bottom of this. Not lupus. I do have signs of peripheral neuropathy and raynauds, also in the family.

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Replies to "I get hot cheeks, ears, hands and at times feet. I havent been diagnosed. What is..."

@januaryjane Hello,
I’m sorry you’ve been having problems and can’t seem to find help. Have you talked with your doctor specifically about the rash and neuropathy? Make a list, related to those two things, of what’s bothering you and the specific questions you have. Then, make an appointment. Have you read through all the past posts on this discussion? They could be quite helpful to you. Can you call and get an appointment?