Hello @babyur4me, thank you for the private message. @emfm4me responded to your last post with her experience of being treated at the Jacksonville Mayo Clinic for Erythromelalgia. If you click the View & Reply button in the email notification you receive, it will take you to this post in the discussion where you last posted. You mentioned your grandson's symptoms are more like Stevens-Johnson syndrome. Mayo Clinic has some information here:

Stevens-Johnson syndrome
-- https://www.mayoclinic.org/diseases-conditions/stevens-johnson-syndrome/diagnosis-treatment/drc-20355942

@babyur4me how is your grandson doing now?