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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)
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@emfm4me

@babyur4me I am being treated at the Jacksonville Mayo Clinic for Erythromelalgia. At Mayo, I was quickly and accurately diagnosed. I am happy with the care I am receiving from my Rheumatologist. They do not have a magic bullet for this disease, though. Treatment focuses on symptoms, and may vary by individual.

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Replies to "@babyur4me I am being treated at the Jacksonville Mayo Clinic for Erythromelalgia. At Mayo, I was..."
John, Volunteer Mentor | @johnbishop | Jun 18, 2019

Hello @babyur4me, thank you for the private message. @emfm4me responded to your last post with her experience of being treated at the Jacksonville Mayo Clinic for Erythromelalgia. If you click the View & Reply button in the email notification you receive, it will take you to this post in the discussion where you last posted. You mentioned your grandson's symptoms are more like Stevens-Johnson syndrome. Mayo Clinic has some information here:

Stevens-Johnson syndrome
-- https://www.mayoclinic.org/diseases-conditions/stevens-johnson-syndrome/diagnosis-treatment/drc-20355942

@babyur4me how is your grandson doing now?

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