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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)

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@hotfooted

I'm glad you asked.. as I have been posting almost daily about my "experiment" with the Frankincense and Myrrh NEUROPATHY rubbing oil.. Now I can't find where I've posted, but I'm an older lady and haven't really learned my way around here yet.. You might try asking John, a Moderator where to find it.. I would like to post again today if I can locate the place.. Erythromelalgia conversations are listed under Groups, Neuropathy and there are 34 presently..
Nevertheless, I can tell you today that my pain has drastically improved since I began using this oil.. but now my feet have changed to much milder flares of red hot burning, AND most of the time they are so cold that I've started wearing my husband's baggy (on me) wool socks.. If a flare begins, I remove the sock on whichever foot it's on, rub on some oil and wait for it to simmer down.. this can take a while.. I can tell you that I can walk from one room to another mostly without pain.. but still sit and keep my feet raised most of the time.. My doctor told me that it's essential for me to get some exercise, so I ride an exercycle for a mile every day.. Ours has a fan that is run by the wheel turning and that is really good for me.. I will increase the exercise distance gradually.. and I wear only my Merrell Treviso slides when I pedal.. These shoes don't have seams or hard places that could rub my sensitive feet and I buy them on Ebay from time to time.. I will never wear a pair out, I know! Recently I bought a pair there for only $11 plus $11 shipping, just for a different color.. these are grey.. they were listed as used, but actually show no signs of wear.. Like many of us, these were bought some time ago but sat in the closet mostly.. The Merrell shoes from a few years back are great for foot problems, but when they began having them made in China the quality went down drastically.. I won't purchase the newer ones.. the soles are thinner, etc... whereas the older shoes have a wonderful footbed that is smooth, supportive, and softer.. You can tell that I'm sold on them, I guess.. The only meds that I take are Cymbalta, Lisinopril, Mefformin, and Piglosgtena??.... My doctor recently gave me the name of another topical cream that I might try if I need to.. It's available online from a site in Colorado at present, as it has a derivative from marijuana in it, altho doesn't include the part that makes a person "high".. Also another that is habit forming, and carefully watched by the powers that be.. I can get those names and add them if you request them from me.. I've had Erythromelalgia for years, but it has only impacted my life so much over the past 2 or 3.. Thankfully, I am retired and can keep off my feet most of the time.. Please let me know how you get along, keep in touch... Blessings..

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Replies to "I'm glad you asked.. as I have been posting almost daily about my "experiment" with the..."

I just started using Frankincense and Myrrh NEUROPATHY rubbing oil. This is my second day with it. Seems to help lower the temperature of my feet burn, and I like that it acts quickly. Thank you for posting about it.