I'm glad you asked.. as I have been posting almost daily about my "experiment" with the Frankincense and Myrrh NEUROPATHY rubbing oil.. Now I can't find where I've posted, but I'm an older lady and haven't really learned my way around here yet.. You might try asking John, a Moderator where to find it.. I would like to post again today if I can locate the place.. Erythromelalgia conversations are listed under Groups, Neuropathy and there are 34 presently..
Nevertheless, I can tell you today that my pain has drastically improved since I began using this oil.. but now my feet have changed to much milder flares of red hot burning, AND most of the time they are so cold that I've started wearing my husband's baggy (on me) wool socks.. If a flare begins, I remove the sock on whichever foot it's on, rub on some oil and wait for it to simmer down.. this can take a while.. I can tell you that I can walk from one room to another mostly without pain.. but still sit and keep my feet raised most of the time.. My doctor told me that it's essential for me to get some exercise, so I ride an exercycle for a mile every day.. Ours has a fan that is run by the wheel turning and that is really good for me.. I will increase the exercise distance gradually.. and I wear only my Merrell Treviso slides when I pedal.. These shoes don't have seams or hard places that could rub my sensitive feet and I buy them on Ebay from time to time.. I will never wear a pair out, I know! Recently I bought a pair there for only $11 plus $11 shipping, just for a different color.. these are grey.. they were listed as used, but actually show no signs of wear.. Like many of us, these were bought some time ago but sat in the closet mostly.. The Merrell shoes from a few years back are great for foot problems, but when they began having them made in China the quality went down drastically.. I won't purchase the newer ones.. the soles are thinner, etc... whereas the older shoes have a wonderful footbed that is smooth, supportive, and softer.. You can tell that I'm sold on them, I guess.. The only meds that I take are Cymbalta, Lisinopril, Mefformin, and Piglosgtena??.... My doctor recently gave me the name of another topical cream that I might try if I need to.. It's available online from a site in Colorado at present, as it has a derivative from marijuana in it, altho doesn't include the part that makes a person "high".. Also another that is habit forming, and carefully watched by the powers that be.. I can get those names and add them if you request them from me.. I've had Erythromelalgia for years, but it has only impacted my life so much over the past 2 or 3.. Thankfully, I am retired and can keep off my feet most of the time.. Please let me know how you get along, keep in touch... Blessings..

emfm4me I enjoyed hearing that frankensense and myrr helped you I also do essential oils I mix arnica cream add 10drops Peppermint,10drops each of lavender, frankensense@eucolyptus really helps with pain I use it on back,knee and legs hope this helps too

Erythromelalgia is hard enough to get through the days with even if you're a mature lady like myself.. I can't imagine how you manage it having children to look after.. I do remember my younger days, raising our boys and struggling with Fibromyalgia.. When I went to bed at night I was so tired that it hurt even more to lie down.. so I know you have a tough time of it every day.. One thing that helped me back then was massage.. and I was fortunate enough to find a lovely older lady who kept me going through those years.. plus my sweet husband was great at massaging those crazy tender points with his elbow.. Gosh, it hurt.. but felt so good when he stopped.. A friend gave me the name of a highly recommended masseuse just today and I will be making that appointment tomorrow! But, even your kids can learn to give you good back rubs, too.. and press those sore spots with a pencil maybe.. That idea came from a one day foot massage class that I took years ago... pre EM, of course!! Blessings on you, dear...

It's been a while since I've been on here and I thought I'd let you and folks know another recent trick I've discovered to keep my feet cool while I sleep.. The weather has turned a bit cooler here in Oregon lately and I've been needing my heating mattress pad on, but then I have the problem of my feet getting too hot and flaring during the night.. Not good!! That's been keeping me awake a few hours every night.. Well, I went to the fabric store and bought 1 yard of thermal barrier quilted fabric like used on ironing boards.. Now that protects my feet from the heat and I can sleep all night.. I do have to sleep in socks and that keeps me comfortable.. On really cool nights I wear my husbands Wigwam wool socks to bed.. His socks are big and loose and that feels better too.. I hope this tip helps someone else get a good night's sleep, too...